sorry it's be awhile

We didn't find out to much while we were in Chicago. They were pleased with the way the medicine that they put me on last time was working. Before they put me on this medicine when it got cold my joints in my fingers and my legs would hurt so bad. I have not had a bit of pain and that is such a blessing. They wanted to keep seeing my every 3 months for atleast a year, because the lupus can come back so quick they want to stay on top of it. Olivia had a good time in the hotel, but she still wasn't sure about the whole thing, but she did say she wanted to go back.
After I got home my transplant coordinator called and they want me to do the same echo that I had done down here, done up there, they said they didn't get all the answers they needed. Now this was the echo that made me feel like I was having a heart attack. So I have to call and set up an appointment for next time we are up there, since I can't have the transplant for awhile, we don't have to make a special trip. Because I must say I am not looking forward to it.
My bloodpressure has been doing better, they have put me on a new medicine and not to mention that they have been able to take more fluid off of me and i'm leaving out at lower dry weight so that means I must have lost a little weight.
I have to go in Thursday to have the graph looked at in my arm. They are having trouble sticking me at dialysis so they want a scan done. That way they will see where it is and how big it is in places. Pray for good results!
So I hope everyone has had a good week, our next appointment isn't until April. But I will post after Thursday

another day another trip

Well we made it to Chicago, got Emma, ate supper, sat in the hot tub and now relaxing in the room. The only thing is I miss my boys. Another problem, I'm having blood pressure issues. I have had a problem with my blood pressure since the babies were born. I'm on 3 different pills and a patch. It is fine while I am at dialysis, but later in the afternoon, it starts to go up. I have to take an extra pill to lower it, but that is not the best solution. I am going to check with my doctor tomorrow to see what she suggest. High blood pressure is not good on my kidney's and if and when I get the transplant that will be an important part that will need to be controlled. So please say a prayer that we will find a solution to this problem. I'll update everyone Wednesday on what the doctor says, we won't be home till late because my appointment isn't until 3:30 then we are heading home. Pray for safe travels and answers, also pray for josh and Alex back home.
Dear Lord,
Please grant us wisdom, strength, and send us down the right path. Please send me the peace with my blood pressure and the answers that we are seeking. Protect us as we travel, and josh and Alex as the wait for us back home.
Amen

don't know what to do

Olivia has always been the one that liked school, she was always ready to go even when they didn't have it. Alex always wanted to sleep in and stay home with me and meme. Well Santa came a few weeks ago and scared Olivia half to death. Ever since then she cries everytime we drop her off and her teacher says as long as she is on her lap she is fine, but when she puts her down she cries again. I have told her Christmas is over he isn't coming back, but that doesn't seem to help. I'm at the end of my rope I have no idea what to do. I pray everyday that she will understand that I wouldn't send her if I thought he was going to be there to scare her. Please pray that she feels safe and will not be scared anymore.

2010

Well it has began! Here is my plan, to let myself allow God to show me the way! So often i want to do what I want to do. Just like my kids I always tell them i'm the boss, but the one thing I forget if I must answer to someone much higher.
Plans for Life:
live like there is no tomorrow, I will be healed this year, I just know it
love myself for me
show my kids how much I love them every chance I get
love Josh and thank him more for everything he does for us
make more time for just me and Josh
make more time for just me
2009 was a rough year, so I figure things can only go up from here!