We didn't find out to much while we were in Chicago. They were pleased with the way the medicine that they put me on last time was working. Before they put me on this medicine when it got cold my joints in my fingers and my legs would hurt so bad. I have not had a bit of pain and that is such a blessing. They wanted to keep seeing my every 3 months for atleast a year, because the lupus can come back so quick they want to stay on top of it. Olivia had a good time in the hotel, but she still wasn't sure about the whole thing, but she did say she wanted to go back.
After I got home my transplant coordinator called and they want me to do the same echo that I had done down here, done up there, they said they didn't get all the answers they needed. Now this was the echo that made me feel like I was having a heart attack. So I have to call and set up an appointment for next time we are up there, since I can't have the transplant for awhile, we don't have to make a special trip. Because I must say I am not looking forward to it.
My bloodpressure has been doing better, they have put me on a new medicine and not to mention that they have been able to take more fluid off of me and i'm leaving out at lower dry weight so that means I must have lost a little weight.
I have to go in Thursday to have the graph looked at in my arm. They are having trouble sticking me at dialysis so they want a scan done. That way they will see where it is and how big it is in places. Pray for good results!
So I hope everyone has had a good week, our next appointment isn't until April. But I will post after Thursday
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